As September (Childhood Cancer Awareness Month) draws to a close, I figure it’s about time I do a recap of this year’s Wacky Warriors charity softball tournament, which took place on September 6th and 7th. For those of you who don’t know, the Wacky (Warriors …
My heart is hurting today. Truth be told, it’s hurt a lot off and on for several months. The past few days I’ve been especially down, though. The reason why is a one-word answer, and I bet you can guess it. Yep… Cancer. In our …
I know. I know you’ve already seen too many ideas for non-profits to donate to this week to count. I know it’s right before Christmas, and odds are good that your own finances are stretched tighter than you’d like. However, I also know firsthand how much charities like the ones I’ve listed below help struggling families. And I know how deeply you care and want to help others.
This is FAR from an exhaustive list of charities…or charities for childhood cancer…or even LOCAL (to Utah) charities for childhood cancer. A few of these non-profits not only help kids going through cancer but also many other children with different abilities and/or life-threatening conditions. Every single charity I listed here, however, is one that I love. Most of them have directly benefited my family. ALL of them have benefited many of my friends and their families.
Without further ado, here are 20+ charities (complete with links) that I highly encourage you to support and donate to…
I can’t tell you how much joy and relief several of these organizations have given us. Family retreats that helped us have “normal” vacations without medical worries, camps and events that let our children run around and play with other kids who’ve had similar experiences, amazing gifts and toys that brought smiles to all of our faces… I’m so grateful for people and organizations with hearts of gold. I love this famous quote:
“Be the change you wish to see in the world.”
Mahatma Gandhi
I have several friends who are living through the very depths of Hell right now with their kids’ cancer treatments. Hearing that your child has cancer is Hellish enough, but what these families are battling as I type this is unfathomable. So many people are suffering every day. I wish I could take away their pain—or, better yet, CURE the disease that causes the pain, but that ability lies with someone far greater than me.
That doesn’t mean I/we can’t do anything, though. I love it when I can do anything to help ease others’ burdens. It’s a way I can “pay it forward” in gratitude for where we’re at with Lincoln today—20 months off treatment. We’ve been so blessed.
If you have any extra available funds today, please join me in making a difference. Any amount helps! Please make a donation to one of these incredible organizations, and rest assured that the families it will benefit will be so thankful. 💛
For fall break we rented a cute cabin via Airbnb in the Smoky Mountains and had a great time rediscovering Gatlinburg/Pigeon Forge and exploring with my parents. It was everything we’d hoped it would be! We loved the cabin—so much so that Logan still calls …
We were fortunate enough to go to St. Simons Island (SSI), Georgia for the second time this past June! If you’ve been following us for awhile, you might remember that in July of 2022, we attended a family retreat on SSI with Blue Skies Ministries. …
When I was two and three years old, I often excitedly ran up the sidewalk and front steps to a red brick, 1950s bungalow as my mom gathered things from our car. Even though I went there at least a couple of times a week while my mom went to classes at Utah State University, I was always thrilled to hang out with Grandma and Grandpa Ripplinger at their house in Logan. I felt lucky and special because I was the only kid in my family who got to see them so often. My three older siblings were all in school, and my younger sister wasn’t born yet.
Almost all of my earliest memories revolve around Grandma Beth. When my mom went back to college after she was 30, my grandma watched me, and we became the best of friends. She’d always make me lunch—often a peanut butter and jam sandwich, and I’d eat it at their kitchen counter. I believe I inherited my love of cats from her. One of my favorite pictures shows the two of us sitting together in a chair enjoying the company of an orange kitten. I can still quote word-for-word parts of the children’s books we read together. The smell of being in a nursery still takes me back to picking out flowers with her. I can’t see, make, or taste Angel Thumbprint cookies or homemade mints without remembering Christmastime with her.
Grandpa was always there, too—often either reading or working in his small apple orchard out back. Sometimes I’d swing in their amazing tire swing or ride a pink Hot Wheels on their back concrete slab while he worked. I loved the fall, when I could rake up giant piles of Maple leaves with him. And Grandpa’s dry sense of humor was legendary.
My family frequently refers back to a memory that took place when my little sister was about three years old. Grandpa had come over for dinner. After dinner my little sister, Katie, kept getting a peanut butter bar, taking one or two bites out of it, and then giving the rest to Grandpa. After he’d eaten three or four peanut butter bars mostly by himself, he said to Katie, “My dear, I don’t think I can stand for you to have another one of those cookies!”
In my early years, I spent most of my time with Grandma, though. One of my favorite parts of the day was when the mail was delivered through the mail slot that opened right into their living room. I’d hear the mailman open the metal mail flap, and I’d race to the front room to gather the mail as it fell through the hole to the floor. It was such a fun novelty, adding the kind of character that newer homes rarely seem to have.
It wasn’t long before the setting of my memories with my grandma took a giant detour, though.
**************
My mom’s mascara-stained face told me everything I needed to know one morning. Even in my four-year-old brain, it was obvious that my grandma had passed away. My mom ALWAYS removed her makeup and washed her face at night, but obviously she hadn’t the night before. Sometime between when she and dad had left us kids at home with a babysitter so they could go to the hospital and when they returned home before we woke up the next morning, my mom’s beautiful mother had returned to her heavenly home.
I will forever feel robbed that death took her away from me when I was so young. She didn’t get to physically see me become a big sister, get baptized, perform on stage dozens of times, learn to drive, graduate high school, get married in the same temple she’d been married in, graduate from college, or have my own kids. Despite her physical absence, though, Grandma Beth has stayed with me. She’s even occasionally sent me random cats to cheer me up on tough days, but that’s a story for another time.
At 67, my mom is now one year older than her mother was when she passed. And that fact terrifies me. My mom is the ONLY member of her family of origin who hasn’t had cancer. Both of her parents died of the dreaded disease—Grandma Beth from melanoma and Grandpa Conrad from bladder cancer. My mom’s older brother, Robert, was diagnosed with Hodgkin’s Lymphoma as a young father, but he was able to fight it off and survive. Her older sister, Linda, fought Non-Hodgkin’s Lymphoma and then throat cancer valiantly for over a decade, but in the end, it still took her.
Cancer has haunted the people my mom loves for half a century. Through it all, she’s been a selfless caretaker. As my grandma battled cancer, my mom loaded me up in the car, and we went to help at her home or the hospital. We visited her at the Logan Regional Hospital often enough that I had a favorite oncologist. He wore flamboyant ties, and he always had a sucker or two ready to give me. When my mom’s dad got cancer about eight years after my grandma died, my mom helped take care of him. One would think that losing both parents to cancer long before you turned 50 AND watching both of your siblings fight it would exempt you from having the disease visit again, but you’d be wrong.
A little over 21 years after her dad died, the terrible, horrible, no good, very bad cancer came for my mom’s little buddy—my own sweet Lincoln. As was her nature, my mom stepped into our home to help us the day after Link’s leukemia diagnosis. She never technically lived with us, but she basically did Monday through Thursday for all of Link’s “frontline” treatment (the first eight months of his treatment, which were rough). Sometimes she would spend night after night in our guest room, which my boys came to refer to as “Grandma’s room”. Sometimes she would drive to her real home an hour away each night just to return the next day. And each time she stepped through our front door, my boys’ faces would light up, and I would breathe a sigh of relief.
She cleaned for us. She cooked for us. She watched Logan while Josh worked and I took Lincoln to the hospital. She offered support wherever it was needed. Her presence meant that I knew Logan was still having a blast with someone he loved when I was away. It meant that our chaotic life had a less chaotic home since she helped take care of it. It meant that when I needed a nap, I could go up to my room and collapse in exhaustion while she cuddled with Lincoln. In short, she saved us. I don’t know how we would have gotten through Lincoln’s cancer journey—especially in the middle of the pandemic—without her.
Josh and I know that not all families are so lucky. We’ve heard from other families going through childhood cancer about how they don’t have any support from family. We’ve been so blessed with support that I can hardly even comprehend that. My mind boggles at the idea of single parents who have to juggle everything completely alone. We definitely don’t take my parents’ help for granted.
I’ll never be able to pay them back for everything they’ve done for us, but I’m always going to try. Last year when we submitted Lincoln’s Make-a-Wish (MAW) application to go to Disney World and Universal Studios, we requested that my parents be able to come with us. They were key figures throughout all of Link’s 27-month treatment, and we were overjoyed when our request was granted. Our chapter of MAW doesn’t pay for additional people outside of the wish kid’s immediate family, but Josh and I had decided that we wanted to pay for my parents to come with us.
Of course, even paying for my parents to come with us to Florida was far from a selfless act on our part. My mom is not an amusement park enthusiast. She’s not a thrill-seeker, and she doesn’t like crowds. She went as a child to Disneyland once, and she didn’t seem bothered by the fact that she’d never gone again. It doesn’t help that she gets motion sickness. She probably would have been perfectly content to never go to another amusement park again. Luckily for us, though, she always wants to soak up as much time as possible with her grandkids.
When Josh and I told my parents about Lincoln’s wish trip, both of them said it sounded amazing and they’d like to come. I think my mom mostly wanted to witness the excitement and joy on our kids’ faces. Plus, like me, she’d wanted to visit Harry Potter World since before it opened. We’re huge “Potterheads” in my family.
We thought my dad, on the other hand, would be right at home at Disney World. He loves being around people and having fun. He’s tall, loud, and has a one-of-a-kind laugh. I frequently tell people that he’s like Goofy. He brightens everyone’s day and loves doing so. In fact, he literally plays the “Jolly Old Elf” at Christmas parties every year.
Our months of waiting for the trip ended the week before this past Thanksgiving. We flew to Florida on November 17th, and we flew back home on November 22nd. Just like throughout Lincoln’s treatment, my parents were with us the whole time. It takes a village, and every village deserves a celebration after they slay a dragon together.
The fact that we were able to go on the trip and all have a great time was a miracle in and of itself. We thought we’d be safe from hurricane season going in mid-November, but we were wrong! Hurricane Nicole hit Orlando the week before our trip. We were originally supposed to go that week, but LUCKILY Make-a-Wish had to bump us to the next week. On top of that, both of our boys (especially Lincoln), were sick off and on—in and out of the hospital—for months before our trip AND months after it. Our trip fell squarely in between lots of weeks of uncertainty about whether or not we’d be able to go. Lots of people joined us praying that everything would work out. Once again, our prayers were answered, and Link’s ideal wish trip was granted.
The trip included three days at Disney World and two days at Universal Studios. We stayed at an amazing place called the Give Kids the World Village. The Village was founded by Henri Landwirth, a Holocaust survivor, and it provides weeklong, cost-free vacations for critically ill kids and their families. (I’m actually reading Landwirth’s memoir right now, and it’s fantastic!) Everything about this 89-acre place is magical: free carousel rides that my kids couldn’t get enough of, a dinosaur-themed miniature golf course, a giant train display AND an actual train to ride on, a life-sized Candy Land game, delicious meals, unlimited ice cream, and more. It was all included. We feel so blessed that we got to experience it, and we can’t wait to go back and volunteer there someday.
At Disney World, we got to watch my Star-Wars-loving parents’ faces light up as we experienced Galaxy’s Edge. We got to watch snow fall on Main Street together at Mickey’s Very Merry Christmas Party. We got to share scrumptious treats at Epcot. We rode a ton of rides and each picked out our favorites.
It was ironic, though, when our predictions of how my parents would enjoy the trip ended up being practically the opposite of what we’d expected! My dad was the one who needed to take frequent breaks, while my mom was the Energizer Bunny and kept being adorably surprised at everything Disney World had to offer. My dad got motion sickness more and chose to stay behind at our villa one day while my mom soaked in Harry Potter World at Universal Studios with us. (Though, to be fair, we suspected certain sporting events on TV prompted him to stay back just as much as anything else, sports fanatic that he is.) All in all, the six of us had a once-in-a-lifetime vacation together.
Will a free vacation pay my parents back for their priceless service to us? Unequivocally no. But we hope it showed them how much we appreciate them. And I will always cherish the memories my boys were able to make with them there.
My mom won’t be nearly as thrilled with the other “gratitude gift” I’m going to give her. I’m going to force her to schedule a routine doctor’s appointment for herself. She’s always taking care of others and putting herself last. She can’t remember the last time she went to a doctor, but I’m going to make sure that changes. As I get older and more and more of my friends lose their parents, the thought of losing mine almost sends me into a panic attack. Since early detection is the key to fighting so many diseases, I want my mom to get checked ASAP. She’s probably 100% fine! When I asked her why she hasn’t been to the doctor for so long, she said that people go to the doctor when they don’t feel good, and she’s felt perfectly fine.
Though she’d never admit it, it’s possible she’s also a bit scared of going to the doctor and being told bad news. She’s experienced enough of that with the people around her for a fear to be perfectly understandable. It’s also not like she never goes to the hospital. She frequently accompanies my dad, who had a stroke when I was in high school and miraculously recovered, to his many follow-up visits. She just doesn’t go to appointments for herself. Better the monster you can see and fight than the one lurking in the shadows, though, so she’s scheduling herself an appointment!
As parents, we’re expected to check under our kids’ beds for monsters. Sometimes, though, kids have to do it for their parents, too. From generation to generation, the incredible moms in my family have forged strong armor together. I know we can come out victorious against anything, but I’m really hoping we just get to relax and have fun together for a long spell now. Maybe Grandma Beth can send us some cats to fend off the monsters.
September is Childhood Cancer Awareness Month. I worked on a different blog post about childhood cancer for several weeks in September, but it was honestly really hard. I bounced around working on one blog post after another, trying to get up the motivation to complete …
What Vacation?! You know the good ol’ saying, “I need a vacation from my vacation!”? Yeah. I definitely needed one after our trip to Georgia. We’ve been home for a whole month, but I came home with a horrible cold that refused to leave me …
Have you ever thought about what songs would be included on the soundtrack if your life were a movie? I have! In fact, when I was a teenager daydreaming about being the heroine of my own romantic movie, I thought about it a lot. 😂🤦🥴 Luckily, I’ve grown up a little since then, and my soundtrack wouldn’t be all love songs now. At my memoir writing group a couple of months ago, we each worked on a fun writing prompt: If your life had its own soundtrack, what five songs would be on it? Here’s what I came up with:
Track 1: “It’s Happy Wake-up Time” by Steven Kay Webb
I tried to think of a professionally-produced and distributed song that encapsulated my childhood, but nothing compared to my dad’s. Each Saturday and most Sundays growing up, my siblings and I were awakened by my dad belting out one of his own made-up songs to get us out of bed and to the table. It would start with him imitating a trumpet call: “Da-da-da-da-da, Da-da-da-da-da, Da-da-da-da-da-da-DA-da!” before moving on to the verses.
"It's happy wake-up time!
It's time to rise and shine.
It's happy wake-up time.
It's yummy breakfast time!"
When I was little I loved it. It meant my dad had already made a hot breakfast, which made getting out of bed easier. He usually made something simple like waffles, pancakes, or French toast. The real treat, though, was when he made what we call Slapjacks. Basically he’d take frozen Rhodes rolls, thaw them in the microwave, stretch them out to be the size of mini individual pizzas, and then fry them on the griddle. They’re delicious! I still crave them sometimes and don’t get them nearly often enough. After buttering them, we usually top them with sugar, honey, or (my personal favorite) my mom’s homemade raspberry jam. Perfection.
As my siblings and I got older and turned into surly preteens and teens, we’d groan and roll our eyes each morning we heard his infamous song. We just wanted to sleep in, no matter how delicious breakfast was. Typical, ever-annoyed, ever-annoying youth.
Now that we’re all grown up, we don’t get to hear his song very often. Occasionally, though, if we spend the night at their house, we get the privilege of hearing it, announcing that breakfast is ready. It never ceases to bring a smile to my face.
Track 2: “The Middle” by Jimmy Eat World
This song was released when I was in high school, and I adopted it as my personal anthem. I know pretty much all teenagers stress about what others think of them. The amount of time I wasted worryingwhether or not others liked me was unreal, though. For better or for worse, I’ve always been an overthinker. (You’ll definitely hear that refrain a lot in my blog posts.)
Luckily, I *usually* wasn’t consumed by my ruminations. This song helped on that front! Anytime I found myself second-guessing whether or not I’d said or done the “right” thing, I’d reassure myself with these lyrics:
"Hey, don't write yourself off yet.
It's only in your head, you feel left out
Or looked down on.
Just try your best.
Try everything you can,
And don't you worry what they tell themselves
When you're away."
Admittedly, I still need to think about this song to stay in my own lane more often than I’d like to. It’s a process. Someday I might care less about what others think about me. Until then, I’ll try my best.
Track 3: “Come What May” by Ewan McGregor and Nicole Kidman
My husband and I picked this song to be “our song” before we were married. We never had a moment where a song had naturally become our song, so we actively looked for one. One day leading up to our marriage, we looked up and listened to dozens of love songs to try to determine what we should claim as ours. We wanted to pick two or three for our wedding videographer to use.
Music had always been something Josh and I had bonded over. In fact, just a little before we started dating, Josh had given me a CD mix of songs he thought I’d like. We were friends for months before we started dating, but by the time he gave me the CD, I already really liked him as more than a friend. I’m embarrassed to admit how many times I listened to that CD, overanalyzing the lyrics to death for hidden messages that he liked me, too. 😂 Are you noticing a theme? Yes. Young Becca was very much a romantic.
Anyway, we had many songs we already loved, but we also listened to several common wedding songs to see if they’d make our cut. After spending hours listening to songs, we narrowed it down to this one. We loved watching Moulin Rouge together, and we loved the song. Some runner-ups to the winning song were “The Luckiest” by Ben Folds and “We’re Better Together” by Jack Johnson.
As the years matched on, “Come What May” became our song more and more. Each new trial we encountered and overcame reinforced the song’s lyrics for each of us:
"Come what may,
I will love you
Until the end of time."
Track 4: “There Will Be a Day” by Jeremy Camp
I am so grateful for this song. Josh and I first heard it shortly after I’d been discharged from the hospital after delivering Lincoln and Logan. They were obviously still in the NICU (since they were in the NICU for almost six months, and this was only a week or two after they’d been born). At that time, Josh and I frequently tuned into Christian Rock music stations. We like songs with a subtle spiritual message, but Sunday “church” music is often a bit much for us throughout the week. 😂
We were on our morning drive to the hospital to visit our boys when this song came on. By the time it was over, both Josh and I had tears streaming down our cheeks. And we replayed it over and over again on Spotify until we reached the hospital. It became our NICU theme song.
Even now, anytime I hear about something unfair happening, these lyrics start playing in my head:
"...I hold on to this hope
And the promise that He brings
That there will be a place with no more suffering.
There will be a day with no more tears,
No more pain, and no more fears.
There will be a day
When the burdens of this place
Will be no more.
We'll see Jesus face to face,
But until that day
We'll hold on to you always."
Track 5: “The Next Right Thing” by Kristen Bell
Like many people, certain songs have helped Josh and me get through some very dark times. We chose a Christian Rock song to help us weather the storm of our boys’ NICU stay. The last track on my “soundtrack” is practically gospel, too; it’s a Disney song. 😉
We first heard it about two weeks after Lincoln was discharged from the hospital after being diagnosed with leukemia. Earlier that day, we’d spent several hours in the Oncology clinic at Primary Children’s Hospital. Lincoln had needed another transfusion, which took a long time. Then he had an NJ-tube placed (after he threw up the NG-tube they tried to place first).
The first week and a half being home with Link, it had been absolute torture administering all of his medications. He fought; he cried; he screamed. We cajoled; we comforted; we forced. It took close to an hour for us to get all of his required meds in him. It was traumatic for all of us. Quickly we learned that it wasn’t going to be maintainable for the 2+ years of treatment he had, so we arranged for him to get a feeding tube at the end of his clinic visit. It was a tough pill to swallow considering the fact that we’d always been so grateful that both of our 23-weeker boys came home from the NICU eating 100% by mouth. That is SO RARE! Lincoln needed a feeding tube at three years old, though, to prevent further complicating his oral aversions.
We finally got home from the hospital around 7 or 8 at night. Giving him his meds was so much easier!!! We still had to learn how to operate a feeding pump, though, since Lincoln had stopped eating by mouth almost entirely by this point. Our medical equipment supplier met us at our house to train us. It was already past bedtime by this point, but luckily Frozen 2 had just been released that day to streaming services. We hadn’t seen it yet, but our boys LOVED the first movie (as almost all kids do 😉), so they watched it in our family room with my mom while Josh and I learned the new ropes (bags, tubes, pumps, plugs…) we’d been handed. Then the medical nurse left. And it was up to me to get Lincoln’s newly-prescribed formula ready and running.
I. Felt. So. Overwhelmed. I put on a brave face for the nurse, Josh, my mom, and our boys, but as I stood alone in our kitchen filling the feeding bags with Lincoln’s liquid food, getting it arranged correctly in the feeding pump, and priming it, tears pricked my eyes. I couldn’t help wondering, once again, how we were possibly going to have the stamina to endure the next 2+ years and all it entailed.
While I was preparing the food, what became our cancer-fighting theme song came on the TV. After I finished taking Link’s feeding bag up to the boys’ nursery for bedtime, Josh and my mom told me I had to sit down and listen to the song. The entire song spoke to me.
"I've seen dark before, but not like this.
This is cold, this is empty, this is numb.
The life I knew is over, the lights are out.
Hello, darkness, I'm ready to succumb.
I follow you around; I always have,
But you've gone to a place I cannot find.
This grief has a gravity, it pulls me down,
But a tiny voice whispers in my mind:
You are lost, hope is gone,
But you must go on,
And do the next right thing.
Can there be a day beyond this night?
I don't know anymore what is true.
I can't find my direction, I'm all alone.
The only star that guided me was you.
How to rise from the floor?
But it's not you I'm rising for.
Just do the next right thing.
Take a step; step again.
It is all that I can to do
The next right thing.
I won't look too far ahead.
It's too much for me to take,
But break it down to this next breath,
This next step,
This next choice is one that I can make.
So I'll walk through this night,
Stumbling blindly toward the light,
And do the next right thing.
And, with it done, what comes then?
When it's clear that everything
Will never be the same again?
Then I'll make the choice to hear that voice
And do the next right thing."
I felt like it was God answering my unuttered pleadings for help. When the song ended, all of the adults in the room were crying grateful tears. Now ANYTIME I feel overwhelmed and wonder where to start on something, Kristen Bell’s sweet voice whispers to me: Just do the next right thing.
Epilogue
Now it’s your turn! What songs would be on your personal soundtrack?! I’d love to get to know you (& your taste in music) better!
We’ve all heard the phrase “every parent’s worst nightmare”. It’s often spoken in hushed disbelief surrounding moments of trauma. Every parent fears ever being told that their child has cancer. It’s a fear we all have, but no one ever expects it to actually happen …